Wednesday, November 28, 2007

I was right, I have a cold

dammit!

sorry if anyone calls me up and i'm like '[cough] hello, no sorry cant hear you, my ears are bunged up [sneezes]'

ah well, life goes on, got to take Peter to get his blood pressure checked in the morning, and will stock up on lemsip as well.

goodnight [sneezes]


Tuesday, November 27, 2007

Today was a long long day.

And I'm not feeling 100% so spent a lot of the day nodding off in the transplant clinic, and hiding behind a book as didnt want to give anyone anything of what i have. I'm not sick sick, but just not feeling right. But that could be because Serena has been unsettled for 3 evenings now with a low level fever and cough, and keeps climbing into bed with me in the night for cuddles awww.

The day was long. It started off badly when traffic near the M25/M10 near st albans almost ground to a halt. I knew then it was going to be a long journey. We started driving to harefield before 9am, after dropping the children off at school and Nanny's house. We got to harefield after 10.30am. Its normally a 45 minute journey. Peters bloods didnt get taken till after 12. Then he had an ECG and was told to go to lunch. after lunch he had an echocardiograme, but then the doctors went ion their lunch, so we went back to the pavillions for a drink. Peter saw the doctors and we finally got home as the children were having their tea. The miserable weather didnt help today either. And i dont like how early it gets dark (god i'm a misery old woman today lol). Bring back summer and light evenings. At least then the day doesnt seem over befor its begun.

Good news was peter didnt need a biopsy today.

Bad news? There isnt any.

:)

Monday, November 26, 2007

Back at harefield tomorrow

Peters last biopsy two weeks ago showed mild rejection again. So tomorrow, we are back there for the usual round of tests. Hopefully, the non-invasive tests will show good results and the biopsy wont be nesscessary. But we are getting readyto be there all day.

So fingers crossed.

Saturday, November 24, 2007

More Angels.

Sadly, the young man i posted about on Thursday passed away after surgey (not transplant). I also learnt of another liver patient who passed away recently. To the young mans family, and the other young angels families I extend my love and prayers.

Sometimes, it hits me hard, that no matter how hard you campaiegn, talk about organ donation, and just pray, not everyone will be saved and given a new chance of life. I know how lucky we have been, to have this new life, and we are embracing as many moments as possible, and starting each day with a 'wow, it really happened'.

Its been 4 months now, and I still ask 'Are you sure you're ok doing that?' when Peter helps out at home. He collected the girls from school the other week by himself, walking as DVLA still havent reissued his liscence (he had to hand it over when he had the ICD fitted). He cooked their tea as well. I was driving back to harefield to give his 24hour holter monitor back.

I never thought that a 'normal' life could be so wonderful and amazing. It still feels like there are sunbeams all around us.

Just so glad that we have this chance. Because Peter was almost an angel too many times.




Thursday, November 22, 2007

Another Superman. This time its Oli's turn

I have been beaming since I read Emilys blog yesterday about Oli. He had a double lung transplant earlier this week after being on the list 2.5 years. Seems like a lot of 'long timers' on the list are finally getting their new chance of list (hello other Peter).

But as i learnt of Oli's good news, I was on mumsnet.com reading about a ladies friends husband on there who has just been listed for an emergency liver transplant.

So if you have ever thought of organ donation, and still havent gotton round to registering then please do, you can do it online, on the phone 0845 60 60 400, or by post if you pick up a leaflet at most GP's surgeries.

Monday, November 19, 2007

watch this and give someone a hug

Late night ramblings.

now, do i change the title of this blog? because we are no longer 'waiting for the call' but i dont want to let this blog go. I have really enjoyed writing things down and in some ways it has helped me keep my brain from turning to mush.

tomorrow peter has to go to the dentist. he is not happy about it. neither am I because his appointment is at 4pm which means I have to keep 3 kids entertained in dentist waiting room. oh what joy!

Callum's appointment is tomorrow morning. Maria is very worried, but trying not to show it.

Also slowly, 3 years worth of clutter from our home is disappearing. I'd forgotton how good Peter was at de-cluttering.

Friday, November 16, 2007

big catch up


sorry sorry sorry

Ok. Little Sis Lisa, is out of hospital .she scared the shite out of us by getting really ill, reacting to every anti biotic they gave her, and finally having her gall bladder removed, as well as over a dozen stones, about 2 weeks ago. She is doing ok and slowly getting back on her feet. She amazingly managed to keep her breastmilk going for her little baby girl by expressing and is now getting her daughter back to breastfeeding.

Peter is doing well, but has toothache. and due to the fact he was in hospital for so long our old dentist has kicked us off their list, and we are now in the process of trying to find peter a dentist ASAP and having to pay for private dental treatment. which he isnt happy about doing, but tbh if it stops him going on about toothache i will gladly pay lol. (i have never had toothache, fillings etc so apparently i cant know how bad it is).

Little Callum came home after less than two weeks in SCBU. But he is having weight gain issues and only reached his birth weight from 6 weeks ago last week. He is dropping off the charts. So he needs some 'get fat quick' vibes from everyone. He is totally gorgeous and big eyed little boy. He makes me very broody, as does jasmine, but I think after having three girls, 3x9months of Hyperemesis Gravidarium, which puts me into hospital on drips, I can pretty much say, no way to baby #4. lol.

I have been learning how to face paint, much to my girls delight. Its good fun, and allows me to paint without yelling 'where my paint book/sketch pad' as i can do paint doodles and working out things on my hands, arms and knees lol.

Diet is going well, slowly getting there. i have also started aquafit classes which Peter finds funny as the receipt says 'Over 55's Ladies aquafit' He says either I look older, or I have been lying about my age ;) lol.

Monday, November 05, 2007

dont tell anyone but...

i just ate 3 chocolate covered caramel digestives.

eeek!

Saturday, November 03, 2007

SAW IV review


i have no idea really as watched it behind my hands

Thursday, November 01, 2007

A family holiday? surely not!!


Oh yes!

last thursday night, we decided to go away for the weekend. Just us. (and the girls of course). No extra equipment, no wheelchair, no wires, leads, bottles etc etc. Just packed suitcases, buggy and went on Friday.

We went to Clacton, to my families caravan. Fully heated of course(because it was bloomin freezing at night). We spent saturday at the pier, taking the girls on rides, playing silly games, and eating out. We spent the evenings in the clubhouse, watching the kids playing silly games (the eldest two rock at the limbo lol, they have an unfair advantage as are hyperflexiable), and having a drink together. the girls played on the site, and we went swimming!

Life is slowly becoming more and more normal.

tomorrow, myself and peter are off to the cinema. To see 'SAW IV'. I want to take a cushion to hide behind, do you think they will let me?