Thursday, June 21, 2007


and for once I am talking about myself and not Peter.

I spotted a rather suspicious looking mole a couple of weeks again (non-animal type, on my skin). So I went to the GP, who looked at it and suggested it be removed for tests. So it was taken off today.

Now bear in mind, I have never ever had an minor operation, never had stitches except after childbirth, and after childbirth anything should be a doddle.

But it wasnt. The numbing injection wasnt so bad. The cutting away of the mole, again not to bad. The stitches were fine.

But now, 12 hours on, my arm is aching all the way to my finger tips, my shoulder feels heavey, and anytime i move my arm i can feel the stitches tugging.

All I can say is, I would make the worlds worst patient lol! I am dosed on painkillers, and am very grumpy as am trying not to move my arm too much, which means i cant do too much today. which is a PITA as i actually want to do stuff.

stitches out in 10 days, results in 3 weeks.

Monday, June 18, 2007

This may not make much sense, because I am confused a bit.

Today Peter got a call from the VAD team. There is a slight problem with some black boxes. They are meant to be set to alarm at 3000 hours for changeover for a new machine. But some have been set to 1500 hours. So to avoid early alarming as they dont know which ones are set to 3000 and which are set to 1500, they are changing Peters machine over next week. He will be issued with a new 1500 hour machine, which means that he will now have a new machine every 6 weeks-ish i guess.

And still the phone doesnt ring.

Saturday, June 16, 2007

Sunday, June 10, 2007

Bad dreams


dont want to talk about it much. but it was bad.

Saturday, June 09, 2007


Peter has a kink in his outward driveline. the one from his left ventricle to the bladder of the pump. It has been there a while and we have been instructed to keep an eye on it. Yesterday the dent was noticiably bigger.

So quick trip down harefield, seen and sent home within 40mins.

he has been swabbed for infection as well, just got to wait and see really.

still no call.

Saturday, June 02, 2007

Hitting a brick wall? Maybe not, things are picking up.

WEll. transplant news?




This week has been school holidays (yay from the girls, groans from me). We have been to the beach (sunny), the zoo (cold wet and short flurry of sleety snow) and the farm(today, very hot!) in the last week . The girls have scootered for miles, Lauren has had SALT daily and has been signed off till the end of september yay, so we have the full summer holidays with no appointments booked in so far Yippee!!!

And, a local hospice is going to look at helping us out. The situation that Peter is in, is a strange one. He isnt a terminally ill patient, so he doesnt automatically qualify for the 'benefits' that terminally ill patients do (the term benefits is joke, its not realy a benefit, but its what its called). our lovely district nurse has been searching for months for a way to help ease the strain. The hospice has said they will help, whether it be with childcare and taking the kids out so i can have a break, or taking care of peter (if they can be LVAD trained), and possibly freeing up a weekend so I can take the children away for a short holiday, which will please the kids no end, they just want a holiday and a bit of normality. When Peter was in hospital I did take the children on several short breaks to caravans site sin the UK, and always panicked when I couldnt get a phone signal. So a little sliver of hoe shinign through. We have a meeting with the hospice next week, so maybe more news after that.

Its back to school on monday, nicole has got a project about Life in the 1980's so I have been full of nostalgia, and need to hunt out a few photos for her from my own school days in the 1980's.