WEll. transplant news?
This week has been school holidays (yay from the girls, groans from me). We have been to the beach (sunny), the zoo (cold wet and short flurry of sleety snow) and the farm(today, very hot!) in the last week . The girls have scootered for miles, Lauren has had SALT daily and has been signed off till the end of september yay, so we have the full summer holidays with no appointments booked in so far Yippee!!!
And, a local hospice is going to look at helping us out. The situation that Peter is in, is a strange one. He isnt a terminally ill patient, so he doesnt automatically qualify for the 'benefits' that terminally ill patients do (the term benefits is joke, its not realy a benefit, but its what its called). our lovely district nurse has been searching for months for a way to help ease the strain. The hospice has said they will help, whether it be with childcare and taking the kids out so i can have a break, or taking care of peter (if they can be LVAD trained), and possibly freeing up a weekend so I can take the children away for a short holiday, which will please the kids no end, they just want a holiday and a bit of normality. When Peter was in hospital I did take the children on several short breaks to caravans site sin the UK, and always panicked when I couldnt get a phone signal. So a little sliver of hoe shinign through. We have a meeting with the hospice next week, so maybe more news after that.
Its back to school on monday, nicole has got a project about Life in the 1980's so I have been full of nostalgia, and need to hunt out a few photos for her from my own school days in the 1980's.