Today I took the older two girls to the cinema to see 'Happy Feet'. You know, the story of a penguin who is damaged before he is born, leaving him disabled and delayed in development. Some people will probably be going 'eh what, its about a dancing penguin, what is this woman on?' But you have to read between the lines sometimes to see what is there in front of our faces.
We had booked 3 seats in the back row, mainly as Lauren gets very twitchy and we need to be able to leave quickly and quietly 'just in case the phone rings for a transplant' whilst we are there. Behind our seats was a wheelchair space. I looked and thought fleetingly 'hmm i wonder if we could fit Peters LVAD in that space'. then i remembered the need for mains power. And would other cinema-goers be as tolerate of his clicking/beeping/ticking as we are. Obviously we are used to the noises now, and can watch a film easily and filter out the background noises of Peter (and the washing machine) at home. So no, not really an idea to go with at the moment. Lauren did get twitchy and dancey (well she is 4years old, watching a film with lots of dancing and singing, you cant really ewxpect her NOT to want to join in) and had to be restrained at one point when she tried to launch herself into the row in front. She had a quick boogie in the aisle midway through then settled down.
At the end of the film the girls were very chatty and full of life, for a few moments life seemed normal then 'I wish Daddy could come with us next time' 'yes when he doesnt have a cheem(machine) and has a new heart he can'.
I am just rambling, but one day I want to be able to go to the cinema as a FAMILY and not leave Peter at home with a carer. To spend a day out altogether, and maybe leave the mobiles and cameras at home. Just a 'normal' day would be great.
Please ring phone, ring. the sooner the better.