Monday, January 29, 2007

He still smells a bit

Peters result have come back. He was growing three different bugs on his tubes to his heart. But he cant remember what they were so i cant really tell you. Doesnt he know how much i need details lol.

Anyway, he is on the right antibiotics, and he has to go back tomorrow for a check up, more blood work and swabs.

Justine laymond is back in harefield as well, fighting a nasty virus. and is on some serious new medication to combat it. Her webpage is

And Emilys blog is apparently being investigated as blogspot think its been attacked by spammers, when really its just everyone trying to check up on the pink sparkly one and her new set of lungs.


Wednesday, January 24, 2007

Smelly Smelly man

Peter has a bacterial infection in his LVAD site. both tubes, which lead directy to his heart. hmmm. So he has been swabbed, pricked and given more pills to take. He has to go back to Harefield next week for another check up, and also has to phone in the morning to get his blood results and make sure the anti-biotics are the right ones.

Also, in other news, lauren has been given a full time nursery place. Which will hopefully make things easier for when THE call finally does decide to come in, and I am dashing off down harefield daily. As before i would have a 3 hour slot to get there, visit and getback. And considering the journey there is 45mins o na good day, well I'd be pushing it just a bit. So now, i am 6hours between pick up and drop offs with just Serena and Peter to take care of.

Emily, my sweetie, keep going, dont push and take it slowly you hear! i want to see you up and about at harefield at some point, but no rushing ok. xxx


Saturday, January 13, 2007

Friends, at times like this you know who you real ones are

the ones who bother to keep in touch. So to my good friends Andy, Rachel, Karl, Charlene, Claire, Kelly, Ciaron, Dave, Zen and Dan, thank you for being there for me over the last 2 years of this hell, for sending cards, remembering birthdays, and general chats. For all my online friends who put up with my late night ramblings of joy, desperation, despair, elation and sobs, thank you as well. And for my wonderful family, my sisters Maria and Lisa, my brother Simon, my parents, peters family, and all those cousin (54 at last count) who have been there as well, thank you.


2007 can only get better.

Wednesday, January 10, 2007

Emily is breathing on her own

with her lovely new set of lungs

its such wonderful news.

Friday, January 05, 2007

Our Media stuff from xmas I am not sure how long the video will be on the site.

Thursday, January 04, 2007

Its been a strangley sad and wonderful day today.

First the sad. I post on an internet parenting site. I have been posting there for around 4 years now, and have built up friendships with some people, and get to know other posters well. Today it was posted up that a poster's 2year old daughter died in her sleep yesterday. The grief has cut so deeply to many members, and has really affected everyone. Its impossible to know what the family are going through as they deal with the grief of losing a toddler. As someone said, they have a 2yr old hole in their lives. The pain of losing a loved one is always hard, but losing a toddler or baby must rip you apart so so much. Thoughts and prayers are with G and her family at this terrible time of grief.

And then to tonight. At around 9pm, i got a text from Emmie, to say that Emily was going to theatre for a Lung transplant. Finally! After 22months on the list, Emily has a chance of life. Emily has cystic fibrosis and was placed on the transplant list in March 2005, around the same time that Peter was listed. She had spent a large part of the summer in hospital as her lungs were behaving badly, and has lately been very dependant on her O2. Even talking has been a struggle.

Tonight has been an over whealming mixture of emotions, I am sobbing but i dont know if it is with happiness or grief anymore.


Tuesday, January 02, 2007

Almost in tears today, be cause Peter is ON the list

Sounds stupid, but today Peter called the transplant team to make sure he was definatly 100% on the active list. and he is. Burt its been so long without a call that its getting harder and harder to belive the call will ever come in. And what if it doesnt? How long can he spend on the VAD? Can we really carry on for years like this? Not living but just surviving?